We are extubated!
Jackson was successfully extubated to BiPAP yesterday. He is still alert and seems to be on the right path. The docs just gave the order to start his feeds again, […]
Chugging Along
We are still here in the PICU, chugging along. Jackson is still intubated. The plan was to take out the breathing tube on Sunday but he started having seizures, which […]
Roller coaster
Jackson had a rough night on Wednesday. His oxygen kept dropping, he required more and more BiPAP support, and early Thursday morning the docs made the decision to re-intubate him. […]
When it rains, it pours.
I may not make it through February. I’ve already dealt with enough stress to last a lifetime and the hits just keep on coming. The doctors took out Jackson’s breathing […]
Breathing Tube
The initial plan was to take the breathing tube out yesterday but Jackson’s blood pressure dropped a little on Monday night and he was too fluid positive yesterday morning so […]
Update
Jackson continues making positive forward progress. He is down 6.1 pounds over the last 48 hours! This is all extra fluid that he retained when his kidneys stopped working. I […]
He’s peeing!
As of Wednesday morning, we only had to worry about Jackson’s lungs. For every inpatient stay we have ever had, we have only ever had to worry about his lungs. […]
One day at a time
Jackson is in stable but critical condition. He’s better than he was 24 hours ago but he has a long way to go. Our goals for today were to wean […]
Wrong Turn
Things have taken a turn for the worse and the medical interventions for Jackson are incredibly intense and serious. He is on a ventilator for breathing and is believed to […]
It’s a marathon, not a sprint.
We are on Day 19 in the PICU. We’ve been here so long I’ve had to cut Jackson’s fingernails. We’ve been here so long our parent bed now has a […]
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