Watching Grass Grow
Being at the hospital this inpatient stay is like watching grass grow, only more stressful. We sit at the hospital, watch the monitors, talk to the doctors and wait for […]
We are still here
Today is Day 14 of our inpatient stay. Jackson is taking baby steps to getting better. He is still in the PICU and still on BiPAP. He had a window […]
Update
Jackson had a rough night on Sunday and a rough day yesterday. His infection markers and his oxygen requirement both increased. He got a PICC line put in (his first […]
We’re back
We are back in the PICU at Cincinnati Children’s. Today is Day 10 inpatient with no signs of getting discharged. This is going to be our longest hospital stay. Jackson […]
Decade in Review
Everyone has been reflecting on their past ten years so I also decided to take a look down memory lane. 2010 – Josh spent six weeks in Vietnam as a […]
Life is too busy!
Life has kept us exceptionally busy lately. At the beginning of November we took Luca on a short Disney cruise while my parents watched Jackson. This is our second trip […]
Jackson is 8!
Jackson turned eight last week and it’s been quite an eventful twelve months. A year ago he was post-op after his first of three back-to-back surgeries. He had just had […]
We are home
Ten nights in the PICU, 12 days overall in the hospital and we are finally home. I was so excited to reunite our family that I foolishly allowed Luca to […]
We Are Never Getting Out of Here
We are back in the hospital for what is turning out to be our longest stay yet. It sometimes feels like we are never getting out of here. Jackson is […]
Breathing Help
I wrote a previous blog post entitled Mountains, where I lamented the difficult future foreseen for Jackson. Unfortunately, the future appears to have arrived. Jackson is currently inpatient in the […]
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