Getting Schooled
Our family has been quarantining along with the rest of America, but likely following a bit stricter protocol. The number of people allowed inside, excluding residents, stands at one. And […]
Make-A-Wish
Jackson got a Make-A-Wish! In the fall of 2018, a former co-worker, who now works for Make-A-Wish, contacted me and suggested that Jackson apply for a wish. We submitted an […]
Time
There is an abundance of musings on the concept of time, whether it be Dorian Gray, Hootie*, or, my personal favorite, contemporary philosopher/rapper Cannibus. But the coronavirus pandemic has caused […]
Did Jackson Have Covid-19?
The million dollar question on our minds during this quarantine is whether Jackson had Covid-19 when he was hospitalized earlier this year. Despite countless tests, he never came up positive […]
Going Viral
Usually, the closer you get to the future, the better your understanding is of how it will be. You have a better idea of what the upcoming month will look […]
We are home!
Jackson was discharged on Saturday afternoon! We are home and adjusting to our new normal, which includes familiarizing ourselves with Jackson’s new medical equipment, establishing a routine and figuring out […]
Getting Closer…
We are getting closer to going home. We don’t have a date yet (I’m hoping sometime within the next week) but the TCC team has started discussing our plans for […]
The Penthouse
We are still in the hospital in case you were wondering. I anticipate that we will be here another few weeks. We transitioned out of the PICU on Friday afternoon […]
We Are Moving!
Today marks seven full weeks in the PICU at Cincinnati Children’s. Jackson is doing well and we are moving! Assuming a bed opens up tomorrow, we will transfer to the […]
Big Data
Santina has been dutifully updating the blog recently, spurring me to want to share perspective. On this, our 44th day in the hospital, a sense of routine, and dare I […]
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