Life is too busy!
Life has kept us exceptionally busy lately. At the beginning of November we took Luca on a short Disney cruise while my parents watched Jackson. This is our second trip […]
Tag Archives: lissencephaly
Jackson is 8!
Jackson turned eight last week and it’s been quite an eventful twelve months. A year ago he was post-op after his first of three back-to-back surgeries. He had just had […]
We Are Never Getting Out of Here
We are back in the hospital for what is turning out to be our longest stay yet. It sometimes feels like we are never getting out of here. Jackson is […]
Change of Plans
We are constantly canceling or changing plans to accommodate Jackson’s health needs. This usually involves splitting up so that one parent stays home with Jackson and the other goes to […]
Parotid Scan and other updates
We’ve been pretty busy over the last few weeks. The boys are wrapping up the school year. Luca is finishing his second year of preschool; he will go to kindergarten […]
New Equipment
Santa Claus brought Jackson a new swing for Christmas and the weather finally warmed up enough for us to get it out. It’s difficult to find equipment that will work […]
We are home!
It’s been one heck of a long week but we are finally home! Jackson spent two nights in the PICU and three nights/four days in a regular room. We were […]
Hip Surgery
Jackson is scheduled to have hip surgery tomorrow. Because he doesn’t walk, his hips came out of socket, which can cause chronic pain. The surgery is a seven hour procedure, […]
Lots of Updates & a Birthday
Our last post was in June when we wrote that Jackson had been congested and we were using oxygen and suction at home. Jackson’s congestion never cleared up and we […]
The Music Recital
The Cincinnati Association for the Blind and Visually Impaired’s music recital is the most heart warming event I’ve attended. Every performer has a visual impairment and plays a musical instrument […]
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