An Anniversary to Forget
It has now been a little more than a year since Jackson was diagnosed with lissencephaly. I can still remember the day as if it were yesterday. It was April […]
Tag Archives: lissencephaly
Cheers to a new year
I think of myself as an optimist, seeing the positive in everything, which is why it’s hard for me to admit I’m glad 2012 is over. Last year was a rough […]
THANKS FOR THE SMALLEST OF THINGS
I have a lot to be thankful for: great wife, beautiful son, great family, job I enjoy, a couple dollars, and a house over my head. Over the last several years these […]
Ciao Nonno! Fun with Food
We’re working hard on eating. Jackson’s diet consists mainly of Pediasure: Vanilla, Strawberry and Chocolate. Sometimes we get crazy and he gets Strawberry-Vanilla. He eats little baby food and we hope to get […]
Arrr, Matey. Captain Jackson and the Eye Patch
Due to his lissencephaly, Jackson doesn’t process what he sees very well, a condition known as Cortical Vision Impairment (CVI). We work with him on various vision exercises, using simple […]
Winning a Battle in the War on Epilesy
One way that lissencephaly manifests itself is through seizures. In fact, we have found out that many neurological disorders have the unfortunate co-diagnosis of epilepsy. Jackson’s seizures are referred to as infantile spasms. […]
First Post
We hope to start blogging soon… the only thing we have to do is figure out wordpress.
cincinnati b(liss) 