Jackson was confirmed!
Jackson recently received the Sacrament of Confirmation! Confirmation is sacrament by which a person receives an outpouring of the Holy Spirit. Father Earl performed the Confirmation, my dad was his […]
Tag Archives: lissencephaly
Lake Cumberland
We did it! We left the house and took a little vacation! Although my dad likes to say that we aren’t really back to normal yet as we chose to […]
We’re back.
We were a few days away from being out of the hospital for a full year! Jackson was admitted to the hospital on Friday due to high calcium levels. We […]
Surgery
Josh, Jackson and I packed our bags and headed to Children’s Hospital this morning so Jackson could have his parotid gland ligation (i.e. salivary gland surgery). Jackson had this surgery […]
Jackson is 9!
Happy birthday to Jackson, who is nine years old today! We are thrilled to celebrate this birthday but, oh, what a year it’s been! One year ago we were celebrating […]
Make-A-Wish
Jackson got a Make-A-Wish! In the fall of 2018, a former co-worker, who now works for Make-A-Wish, contacted me and suggested that Jackson apply for a wish. We submitted an […]
Did Jackson Have Covid-19?
The million dollar question on our minds during this quarantine is whether Jackson had Covid-19 when he was hospitalized earlier this year. Despite countless tests, he never came up positive […]
We are home!
Jackson was discharged on Saturday afternoon! We are home and adjusting to our new normal, which includes familiarizing ourselves with Jackson’s new medical equipment, establishing a routine and figuring out […]
Getting Closer…
We are getting closer to going home. We don’t have a date yet (I’m hoping sometime within the next week) but the TCC team has started discussing our plans for […]
The Penthouse
We are still in the hospital in case you were wondering. I anticipate that we will be here another few weeks. We transitioned out of the PICU on Friday afternoon […]
cincinnati b(liss) 