We Are Moving!
Today marks seven full weeks in the PICU at Cincinnati Children’s. Jackson is doing well and we are moving! Assuming a bed opens up tomorrow, we will transfer to the […]
Tag Archives: lissencephaly
We are extubated!
Jackson was successfully extubated to BiPAP yesterday. He is still alert and seems to be on the right path. The docs just gave the order to start his feeds again, […]
Chugging Along
We are still here in the PICU, chugging along. Jackson is still intubated. The plan was to take out the breathing tube on Sunday but he started having seizures, which […]
When it rains, it pours.
I may not make it through February. I’ve already dealt with enough stress to last a lifetime and the hits just keep on coming. The doctors took out Jackson’s breathing […]
Breathing Tube
The initial plan was to take the breathing tube out yesterday but Jackson’s blood pressure dropped a little on Monday night and he was too fluid positive yesterday morning so […]
Update
Jackson continues making positive forward progress. He is down 6.1 pounds over the last 48 hours! This is all extra fluid that he retained when his kidneys stopped working. I […]
We are still here
Today is Day 14 of our inpatient stay. Jackson is taking baby steps to getting better. He is still in the PICU and still on BiPAP. He had a window […]
Update
Jackson had a rough night on Sunday and a rough day yesterday. His infection markers and his oxygen requirement both increased. He got a PICC line put in (his first […]
We’re back
We are back in the PICU at Cincinnati Children’s. Today is Day 10 inpatient with no signs of getting discharged. This is going to be our longest hospital stay. Jackson […]
Decade in Review
Everyone has been reflecting on their past ten years so I also decided to take a look down memory lane. 2010 – Josh spent six weeks in Vietnam as a […]
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