Change of Plans
We are constantly canceling or changing plans to accommodate Jackson’s health needs. This usually involves splitting up so that one parent stays home with Jackson and the other goes to […]
Parotid Scan and other updates
We’ve been pretty busy over the last few weeks. The boys are wrapping up the school year. Luca is finishing his second year of preschool; he will go to kindergarten […]
New Equipment
Santa Claus brought Jackson a new swing for Christmas and the weather finally warmed up enough for us to get it out. It’s difficult to find equipment that will work […]
Tooth Watch 2019
Jackson lost his first tooth today! This is a big deal for any kid, but an especially big deal for Jackson as he is at risk of aspirating his teeth. […]
We are home!
It’s been one heck of a long week but we are finally home! Jackson spent two nights in the PICU and three nights/four days in a regular room. We were […]
Hip Surgery Update
It’s been a long day! We arrived at the hospital at 5:45 am. Pre-op went unexpectedly smooth. Jackson did not require any oxygen last night or this morning (His oxygen […]
Hip Surgery
Jackson is scheduled to have hip surgery tomorrow. Because he doesn’t walk, his hips came out of socket, which can cause chronic pain. The surgery is a seven hour procedure, […]
Columbo
In the 80’s detective show Columbo, the quirky lead character, played memorably by Peter Falk, would always approach the (eventually-confirmed) killer and at the denouement of the conversation ask, “Just […]
Lots of Updates & a Birthday
Our last post was in June when we wrote that Jackson had been congested and we were using oxygen and suction at home. Jackson’s congestion never cleared up and we […]
The Music Recital
The Cincinnati Association for the Blind and Visually Impaired’s music recital is the most heart warming event I’ve attended. Every performer has a visual impairment and plays a musical instrument […]
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