cincinnati b(liss)

Our story of lissencephaly, family, and happiness.

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Adventures abound

June 2, 2018by cincinnatibliss 1 Comment

We’ve been really busy doing everything and nothing at all. The kids (knock on wood) have stayed out of the hospital since our last post. Jackson, unfortunately, has been having […]

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2018 needs to slow its roll!

February 21, 2018by cincinnatibliss 2 Comments

Less than three months into the new year and we have had three in patient stays and three trips to the ER! Two trips to the ER resulted in hospital […]

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Surgery

January 16, 2018by cincinnatibliss 8 Comments

Jackson had surgery this morning and it went well. He had two scopes put down his throat to look at his airway and his lungs and a surgeon placed a […]

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Musically inclined?

December 24, 2017by cincinnatibliss 1 Comment

Jackson has been a little under the weather this week. So we’ve spent the week in the house with intermittent trips out for the Bazooka (It’s best if Luca is […]

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Medical updates

December 7, 2017by cincinnatibliss 3 Comments

We’ve been pretty busy since October and are going to stay busy for the next two months. Jackson’s fourth hospital stay this year in August landed us with a referral […]

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Fun Saturday working on Sitting

October 14, 2017by cincinnatibliss 2 Comments

Jackson and I were working on sitting this morning. He’s doing really well at holding his head up. I’m proud and I thought you would like to see our video. 

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We did it

October 1, 2017by cincinnatibliss 5 Comments

We did it. We made it to our vacation. Jackson’s been sick since the end of August. He spend some time in the hospital before Labor Day and caught a […]

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Alternative Haircut 

September 21, 2017by cincinnatibliss 9 Comments

My dad has been cutting Jackson’s hair for the past few years. We usually take the headrest off the wheelchair and someone holds his head and trunk while my dad […]

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“Exciting” start to the school year

September 2, 2017by cincinnatibliss 5 Comments

Jackson graduated from the Perlman Center at Cincinnati Children’s a few weeks ago, where he has been going twice a week for five years. He graduated because he is now […]

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Proud Parents

July 13, 2017by cincinnatibliss 4 Comments

This just happened while waiting for a doctor to come check on Jackson. He removed his sticker with his hand!!! And he did it multiple times!!! He did this all […]

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Ten Things You Need to Know as In-House Counsel®

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Our story of lissencephaly, family, and happiness.

La Tavola Marche - Farm, Inn & Cooking School, Italy

Our story of lissencephaly, family, and happiness.

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Our story of lissencephaly, family, and happiness.

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Our story of lissencephaly, family, and happiness.

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