Lake Cumberland
We did it! We left the house and took a little vacation! Although my dad likes to say that we aren’t really back to normal yet as we chose to […]
Tag Archives: special needs
We’re back.
We were a few days away from being out of the hospital for a full year! Jackson was admitted to the hospital on Friday due to high calcium levels. We […]
Surgery
Josh, Jackson and I packed our bags and headed to Children’s Hospital this morning so Jackson could have his parotid gland ligation (i.e. salivary gland surgery). Jackson had this surgery […]
Jackson is 9!
Happy birthday to Jackson, who is nine years old today! We are thrilled to celebrate this birthday but, oh, what a year it’s been! One year ago we were celebrating […]
Make-A-Wish
Jackson got a Make-A-Wish! In the fall of 2018, a former co-worker, who now works for Make-A-Wish, contacted me and suggested that Jackson apply for a wish. We submitted an […]
We Are Moving!
Today marks seven full weeks in the PICU at Cincinnati Children’s. Jackson is doing well and we are moving! Assuming a bed opens up tomorrow, we will transfer to the […]
Watching Grass Grow
Being at the hospital this inpatient stay is like watching grass grow, only more stressful. We sit at the hospital, watch the monitors, talk to the doctors and wait for […]
We are still here
Today is Day 14 of our inpatient stay. Jackson is taking baby steps to getting better. He is still in the PICU and still on BiPAP. He had a window […]
Update
Jackson had a rough night on Sunday and a rough day yesterday. His infection markers and his oxygen requirement both increased. He got a PICC line put in (his first […]
We’re back
We are back in the PICU at Cincinnati Children’s. Today is Day 10 inpatient with no signs of getting discharged. This is going to be our longest hospital stay. Jackson […]
cincinnati b(liss) 