Trick or Treat
This is what we’ve been up to lately: Jackson’s therapists told me he had been “trick-or-treating” at therapy so I decided to try it at home. I’m so proud of […]
Tag Archives: lissencephaly
New Experiences
Every experience with Luca is a new experience for us. Jackson and Luca are like yin and yang. They are total opposites. Let me give you an example. In May, […]
Surgery
July 7 was intense and overwhelming. Jackson had surgery that Tuesday to fix his teeth and have his undescended testicles lowered (i.e. orchiopexy). It was scheduled as out patient. We […]
Crazy May
May was crazy. May 1 was a normal day. Josh attended the Kentucky Derby on May 2 and I ran the Cincinnati Flying Pig Half Marathon on May 3. We […]
Eye See You
Its been a long week. One ER visit, two doctor visits, the trauma ward, and now the ICU. But so, so much better today. Hopefully home tomorrow. And through it […]
Jackson’s going to teach Luca how to walk #brothers
Here’s how:
General anesthesia?!?
I never knew not having a feeding tube had a down side until we took Jackson to the dentist. Before we went I thought, “He’s only 3 1/2 years old. […]
The person who invented the “cry it out” method did not have a child with epilepsy
The Bazooka is very intelligent but he is not old enough to comprehend the English language. He’s smart enough to know that if it’s 1, 2, 3, or 4 a.m. […]
Reasonable Accommodations
Under the Americans with Disabilities Act, an employer must provide a reasonable accommodation to qualified employees with disabilities. There’s a little more to it than that but you get the gist. […]
He speaks
This happened a few weeks ago: It was bittersweet and I immediately started crying. I’m so happy for the baby, but I’m also sad for Jackson. The Bazooke is just […]
cincinnati b(liss) 