We’re back.
We were a few days away from being out of the hospital for a full year! Jackson was admitted to the hospital on Friday due to high calcium levels. We […]
We were a few days away from being out of the hospital for a full year! Jackson was admitted to the hospital on Friday due to high calcium levels. We […]
Josh, Jackson and I packed our bags and headed to Children’s Hospital this morning so Jackson could have his parotid gland ligation (i.e. salivary gland surgery). Jackson had this surgery […]
We are getting closer to going home. We don’t have a date yet (I’m hoping sometime within the next week) but the TCC team has started discussing our plans for […]
Today marks seven full weeks in the PICU at Cincinnati Children’s. Jackson is doing well and we are moving! Assuming a bed opens up tomorrow, we will transfer to the […]
We are still here in the PICU, chugging along. Jackson is still intubated. The plan was to take out the breathing tube on Sunday but he started having seizures, which […]
Jackson continues making positive forward progress. He is down 6.1 pounds over the last 48 hours! This is all extra fluid that he retained when his kidneys stopped working. I […]
Being at the hospital this inpatient stay is like watching grass grow, only more stressful. We sit at the hospital, watch the monitors, talk to the doctors and wait for […]
Jackson had a rough night on Sunday and a rough day yesterday. His infection markers and his oxygen requirement both increased. He got a PICC line put in (his first […]
We are back in the PICU at Cincinnati Children’s. Today is Day 10 inpatient with no signs of getting discharged. This is going to be our longest hospital stay. Jackson […]
We are back in the hospital for what is turning out to be our longest stay yet. It sometimes feels like we are never getting out of here. Jackson is […]
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Tim's take on professional German writing, translation and language
Our story of lissencephaly, family, and happiness.
Our story of lissencephaly, family, and happiness.
Our story of lissencephaly, family, and happiness.
Our story of lissencephaly, family, and happiness.
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