cincinnati b(liss)

Our story of lissencephaly, family, and happiness.

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Team Jackson Walks for Kids

October 23, 2012by cincinnatibliss 2 Comments

We participated in the Cincinnati Children’s Hospital Walk for Kids on Saturday. We want to thank all of our friends, family and co-workers for coming out and for supporting Cincinnati […]

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Done With The Helmet

October 18, 2012by cincinnatibliss 1 Comment

For the last six months or so, Jackson has been wearing a helmet.  This helmet was designed to shape his head, making it less flat in back and preventing it from […]

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Best Video Ever!!! The harness and the switch

October 17, 2012by cincinnatibliss 10 Comments

This is a video of Jackson at the Perlman Center. He’s in a harness attached to a track in the ceiling. Many of the children at the Perlman Center are […]

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Don’t forget about the Walk!!! October 20, 2012, Coney Island, 10 am

October 14, 2012by cincinnatibliss Leave a comment

Don’t forget about the walk this Saturday at Coney Island. The walk starts at 10:00 am. It’s a 3 mile loop (with a 1 mile option). Our team is Union […]

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Winning a Battle in the War on Epilesy

October 12, 2012by cincinnatibliss 5 Comments

One way that lissencephaly manifests itself is through seizures.  In fact, we have found out that many neurological disorders have the unfortunate co-diagnosis of epilepsy. Jackson’s seizures are referred to as infantile spasms.  […]

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First Birthday Party – Kentucky Style

October 11, 2012by cincinnatibliss 1 Comment

This past weekend, we again celebrated Jackson’s first birthday, this time in Kentucky with the paternal branch of the family tree.  Initially, the event was to be a combined party celebrating […]

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Twelve Month Checkup

October 6, 2012by cincinnatibliss 2 Comments

Jackson had his twelve month checkup this week. It was great. He’s healthy and doing well. Dr. Z, his pediatrician, said his parents are taking really good care of him, […]

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First Birthday Party – Italian Style

October 3, 2012by cincinnatibliss 1 Comment

Jackson turned one this weekend and we celebrated with the first of his two birthday parties.  Not that he is spoiled or anything.  Santina and her family did a great […]

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Birth Day

October 1, 2012by cincinnatibliss 2 Comments

A year ago yesterday I was working my last day of work for three months. I didn’t know it then. It was Friday, September 30, 2011. I was sure I’d […]

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Cincinnati Children’s Walks for Kids – October 20, 2012

September 21, 2012by cincinnatibliss Leave a comment

Get your walking shoes on! This will be our first year walking in the Cincinnati Walks for Kids. The walk starts at 10:00 am on October 20, 2012 at Coney Island in Cincinnati, Ohio. […]

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Our story of lissencephaly, family, and happiness.

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