cincinnati b(liss)

Our story of lissencephaly, family, and happiness.

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Baby Steps

November 29, 2013by cincinnatibliss 7 Comments

Sorry that it’s been so long since we’ve posted. I, personally, have been extremely busy. My life has been consumed with reading paranormal romance novels! Thank you Randi Sue and […]

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Pictures, Better Than Words

October 29, 2013by cincinnatibliss 8 Comments

Whoa, whoa, whoa…there are words here.  That is not what the title led me to believe.  Sorry for that.  Continue. Its been sometime since I took to the interwebs to […]

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Heath White E:60

October 16, 2013by cincinnatibliss 1 Comment

I wanted to share this video, which a friend of mine forwarded to me. Here’s the summary: “There was a time when Heath White chased perfection. E:60’s Tom Rinaldi tells the story […]

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Jackson is 2!

October 4, 2013by cincinnatibliss 3 Comments

Jackson turned 2 this week on October 1. When I thought about his birthday, I thought about what we’ve been through and accomplished over the past year. We got rid of […]

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Where does the time go?

September 19, 2013by cincinnatibliss 3 Comments

If you know me, you know that I don’t stay focused for too long on any one task. I sat down to write this blog post an hour ago, but […]

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Unwanted drama

September 7, 2013by cincinnatibliss 8 Comments

Jackson ended his first year at Perlman as the center of attention… attention his parents wished he didn’t need. It was lunchtime two Thursdays ago when Josh got a call […]

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The Wheelchair, Per Josh

August 14, 2013by cincinnatibliss 3 Comments

If you were to have told me two years ago that I would be happy and excited when my son’s wheelchair arrived, I would not have believed it. But that […]

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The Wheelchair, Per Santina

August 10, 2013by cincinnatibliss 6 Comments

It arrived. No, I’m not referring to Sharknado. Or Shark Week (Bad week to be a seal). We just watched part of Sharknado to see what the hype was about and […]

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Progress

July 23, 2013by cincinnatibliss 8 Comments

Progress. It’s slow, but it’s happening. Jackson’s starting to put his hands on his bottle. I have to help him get his hands there. But once he feels it, his […]

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The Reds + The Bachlorette = Normalcy, Finally

July 9, 2013by cincinnatibliss 3 Comments

Tonight I find myself flipping back and forth between the Bachelorette and the Reds game while Santina finishes feeding Jackson and can’t help but think — finally.  I need my Bachelorette fix.  […]

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Our story of lissencephaly, family, and happiness.

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Our story of lissencephaly, family, and happiness.

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Our story of lissencephaly, family, and happiness.

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